Every step we are breathing in Your grace …

Wow, what an amazing journey our family has been on this past year! I can say with certainty, that this has been the most difficult year of my life.  I believe firmly that everything that happens in our lives is within the sovereign plan of our Creator, even though it is sometimes difficult or impossible to fathom, how what is happening at the time, could be part of God’s ‘plan’. This year was one of those years, where our life’s circumstances, as we were experiencing them, were hard to reconcile as being part of God’s plan for our lives! Thankfully, I have learned (and I’m still learning) that my perspective of my circumstances is quite limited and not very good at revealing the big picture of God’s grace and His glory. Continue reading

Luke is Home!

Luke, © Steve Webel

Luke has finally been discharged from the NICU and is home along with Erica and the rest of the family!  His release from the hospital came upon us quickly and a bit unexpected. On Friday, we had a very outgoing NICU nurse (named Elizabeth) who also seemed very pro-active in moving Luke along in his feedings. She informed us when we arrived around lunch time on Friday that Luke was doing very good and in her opinion, could go home as early as Sunday – but then she warned us to not get our hopes up.

Shortly after that, the NICU doctor on call that day showed up and started to tell us how pleased she was with Luke’s progress and that he could possibly go home as early as Sunday! So our hopes were officially raised. The key benchmark for Luke to meet was for him to manage 16 feedings in a 48 hour period (without having to use the feeding tube). He had been eating 8 meals per day, but they were a combination of eating via bottles, Erica feeding him, and eating via his feeding tube. When we asked when the last time he had been fed via his feeding tube, they looked it up, and it was at noon on Thursday – so he had already gone 24 hours without having to use it! Continue reading

The Latest on Luke

Our life has kinda a ‘blur’ lately. If you’ve been following our family’s story, I’m sure you understand! It’s been a few days since I updated everyone here on my blog, so I thought I needed to give an update!

20120713-113955.jpg

Luke is still in the NICU, but he has been making consistent progress over the past few days! Because he was not having any more troubles keeping his body temp up, he was moved from his special ‘bed’ with the warmer to a normal hospital crib. He has also been pretty consistently keeping his breathing at a more normal (slower) pace. Occasionally his breathing slows way down and sounds the Apnea(?) alarm, but his nurses have not seemed concerned about it. I guess a little bit of that is not a big problem! Continue reading

Next Steps…

It’s been a couple of days, so I wanted to write and update you on what is happening with Luke and Erica.

Erica was discharged from the hospital yesterday. After spending 39 days in the hospital (most of that pre-birth) she was very ready to return home! The family was also very excited to finally have Mom back home! Erica’s surgery was extensive, but it went about as smoothly as it possibly could. However, Erica has a longer road to recovery than normal. Continue reading

Independence Day

20120704-193735.jpg

Happy 4th of July! Today marks one day since we met Luke face-to-face. For those of you following along along on Facebook, you already know many of these details, please excuse the redundancy.
Erica kinda had a rough night, which is to be expected after all that Erica went through. There were 4 different doctors participating in the surgery and an additional one that was there to observe so he could compare what he had been seeing in the sonogram to what things actually looked like. In the end, they had to do a partial hysterectomy because it was the only way to control the bleeding. Today they did a CT scan on Erica as a precaution, it came back normal. Now Erica begins the process of healing / recovery. We don’t know yet when Erica will be released from the hospital, I’ll keep you posted.
Luke was given about an hour to try and slow down his breathing and regulate his temperature, however, he just wasn’t able to do that, so they admitted him to the NICU a couple of hours after being born. He was given an IV and put on a type of respirator called a “CPAP”. It basically helps him to keep his lungs opened up so they don’t collapse down on themselves making it harder for him to take his next breath. During the day today, they have weened him off of all supplemental oxygen and his CPAP is just feeding him the same level of oxygen that everyone in the room is breathing. Continue reading

Today is the day!

Today is the day that we meet our son Luke. The journey to this day has been very emotional. Through it all, God has been sustaining us, allowing our family to experience, once again, the mercies and provision of God and His people in a very tangible way. I don’t know exactly how today is going to go for Erica and I, but I do know that our Heavenly Father does know, and He will carry us through, as He always has!

So many of you have been faithful and relentless prayer warriors on our behalf since all of this started back in December – thank you so much! I know that I’ll never be able to personally express my appreciation to all of you, but please know that I take prayer seriously, and I am genuinely moved by all the prayers you have offered on our behalf!

Continue reading